Data enabling this vision can include the collection of patient-reported outcomes and experience and a patient portal and engagement between patients and physicians about these data and tools
A new algorithm enables to find people affected by a treatable genetic cardiovascular disease. The expected outcome is a massive increase of life expectancy.
A Swiss based citizen-led data sharing platform was instrumental in finding a vaccine for COVID-30. Patient participants were motivated to provide data to medical researchers for the public good.
Seit dem 1. August trat das neue GenX Programm der Swiss Public Health Network (SPHN) in Kraft. Diese setzt anhand einer genetischen Analyse personalisierte Richtlinien für den Alltag.
Personalized data can be misused to deny social benefits to those who have good genes. Because if they develop illnesses it is due to their bad life-style-choices; not to their generic predisposition.
With new regulation, where data is now free to be used for any scientific use but missuse is strongly punished, research in Alzheimer has made a break trough!